T25- Well that went out the window with Christmas dinner. So I decided that I would just start over when we get back from vacation on Jan 6th. I am happy to say that I have cut out my late night meal and have brought it down to a low calorie snack and/or a shakeology shake.
Sleep study- Came and went. We packed up our stuff, soft blankets, weighted blanket, stuffed frog, clothes, pillows, all of that. First we headed over to Marie’s to drop Miss Evee off for the night. She had her very first sleep over with Mallory, Marie’s daughter.
Then Ronnie and I headed to Mary Bridge to get our sleep study on. We check in at 7:40pm and they escort us to the elevators and as our escort pushed the button for the 7th floor my anxiety climbed. The 7th floor of Mary Bridge hospital is where Ronnie was first placed on ECMO. In fact she took us to the exact waiting room that I had to wait in before I could see him for the first time after being placed on ECMO. We had to sit in this waiting room for about 5 minutes before our sleep technician called us back to our room. I was very anxious sitting there waiting. Those doors bring back a lot of memories, not happy ones either.
Letto our sleep study technologist was wonderful with Ronnie, he showed us to our room and left us to get ready for the night, jammas, teeth brushing, etc. About 45 minutes later Letto came back to apply all of the electrodes, and boy do I mean all. I think there was probably about 20 different things attached to Ronnie for the night. First he applied the telemetry monitor to his chest and legs, then the microphone on his throat to monitor his snoring, next the electrodes to his scalp and last but not least the part he hated the most was the end tidal CO2 monitor, which is a nasal cannula that he had to wear on his nose all night long. I don’t blame him having that up his nose all night would really suck!
About 10:30pm we finally got to sleep and because I had worked all night the night before I passed out hard. Around midnight Letto came in for the first time because Ronnie was up and crying. Low and behold it was because he peed the bed, so I get him cleaned up and Letto gets us situated again and off to sleep we go. Now sleeping in a twin size bed in a typical hospital room is absolutely nothing like sleeping at home, its cold not very welcoming, the floor is tile and the bed is hard. Add all of the wires that are essentially gathered into a ponytail at the back of Ronnie’s head and are hooked up to the machines at the side of the bed, top it off with the ETCO2 monitor up his nose and we have a recipe for disaster. Letto came in about four times during the night that I remember but it could have been more.
Finally at 6:15 Letto comes in and says “This is the time we do our wake ups here.” Uh are you serious? I’m not even thinking about getting up at 6:15 most days! Letto is so nice about the whole thing all the while I’m sure I was acting like a zombie. He removed the electrodes and I gave Ronnie a shower to wash all the goop off then we headed down to grab breakfast before heading to Marie’s to pick up Evee.
Marie made the kiddos pancakes from scratch for breakfast. I have never seen anyone make pancakes from scratch, she is amazing. I am a simple kind of girl, I buy the bag of pancake mix from Costco.
All in all it was a very long night and I left more tired than feeling rested but, Ronnie said that he liked his sleep study and had a good time so, sleep study for the win! Although it’s now Jan 2nd and we still don’t have any results. Dang holidays! I will update as soon as I hear from the neurologist.
These are the elusive PICU doors. Fourtunately I won't ever have to walk through them again as they recently added on to the hospital and have a brand new PICU.
And here's one of Ronnie waiting on Letto to place the electrodes.
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